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End of life film and resources

The Foundation funded the production of a short film, Bounce Back Boy, on end-of-life care for a young person with complex needs.

The film aims to raise awareness of the multiple challenges that can arise when a young person with complex needs is dying;and to contribute towards improving the quality and experience of palliative and end-of-life care for young adults and people with learning difficulties.

The project addressed our priority theme of learning disability. Josh Cawley died a distressing death,despite the support of his adoptive family who fought for all of his short life to get the care he needed. Bounce Back Boy is a film that explores the life and the death of 23-year-old Josh.It explores how his, and his adoptive family’s complex needs were inadequately identified, assessed and supported by health and social care professionals. A question-and-answer session with Josh’s adoptive mother, Lynn, follows directly on from the main film where she describes some of the things she would like to be done differently and the impact living with Josh had on her life and those of her immediate family.


For more information on the film, please click here.